Life Limiting Illness

Life Limiting Illness

Any diagnosis that may lead to limitation of life expectancy can be difficult to come to terms with.  Often a life limiting illness diagnosis will trigger an emotional response (disbelief, anger, denial, amongst others) for many of us. These are all natural human responses. 

However with advances of modern medicine many of us are faced with living with this increased awareness of our mortality for many years to come.  When we find ourselves struggling to come to terms with a life limiting illness the knowledge itself may make it difficult for us to carry on our day to day lives.

It is fine if you can cope but if you feel you can't, it may help to talk to your GP or a counsellor as this may not only help you understand what is going on, but may also help you to live in the changed landscape of your life.

More info

Useful Articles

Here's a list of articles on life limiting illness you might find helpful

More children now living with 'life limiting' conditions 
The number of children with conditions such as muscular dystrophy, neurodegenerative disorders or severe cerebral palsy who are surviving into adulthood has been underestimated, a new study shows.

How schools support children with life-limiting illnesses 
One child in every 270 has a condition that is life-threatening or life-limiting.Louise Tickle explores how schools help them stay in mainstream education

Comparing Three Life-Limiting Diseases: Does Diagnosis Matter or Is Sick, Sick? 
The results of this very well done and far-sighted study seem to support the contention postulated in the title -- that being sick, regardless of diagnosis, is what matters.

Charities and support groups

Charities and support groups

Below you will find a comprehensive list of charities and support groups that offer help and assistance to anyone who is struggling with this mental health issue

Mind - For Better Mental Health

We provide advice and support to empower anyone experiencing a mental health problem. We campaign to improve services, raise awareness and promote understanding.  We won't give up until everyone experiencing a mental health problem gets support and respect.

http://www.mind.org.uk

Mental Health Foundation

Provides information and support for anyone with mental health problems or learning disabilities.

http://www.mentalhealth.org.uk/

Salvation Army

The Salvation Army works closely with addiction referral services as well as providing specialist detox centres in the UK. This is complemented by rehabilitation and support programmes.

http://www.salvationarmy.org.uk/addiction-support

Samaritans

The Samaritans provide 24 hour, confidential, emotional support for anyone in crisis.

http://www.samaritans.org/
Helpline 116 123, this number is FREE to call
Email jo@samaritans.org

Elefriends (run by Mind)

Elefriends is a supportive online community where you can be yourself. 

We all know what it's like to struggle sometimes, and this is a safe place to listen, share and be heard. Whether you're feeling good right now, or really low, it's a safe place to share experiences and listen to others. 

Shared experiences and perspectives are valuable and powerful. In this way Elefriends don't just get help, they give help too. In the good times and the bad.

www.elefriends.org.uk

Off The Record

We believe that young people need places to go which are easy to access, where you are treated with respect, and where you can get support and information to help you make your own life choices. Our services are friendly and welcoming – about 1,000 new young people visit us every year. Available in the Richmond borough.

http://otrtwickenham.com/

Papyrus UK

Suicide prevention for young people up to the age of 35

https://www.papyrus-uk.org/
Helpline: 0800 068 41 41
Monday - Friday 10am – 5pm & 7pm – 10pm, Weekends 2pm – 5pm 

Text: 07786 209697
Email: pat@papyrus-uk.org

 

Barnardos

Barnardo’s believes in children regardless of their circumstances, gender, race, disability or behaviour. Our purpose as a charity today is to transform the lives of the UK’s most vulnerable children. We believe in the abused, the most vulnerable, the forgotten and the neglected. We will support them, stand up for them and bring out the best in each and every child.

www.barnardos.org.uk

Family Lives

Offers support to anyone parenting or helping to raise children, from newborn babies to young adults. There are free telephone and email helplines, parenting courses and information leaflets. The website offers lots of advice, real-life stories and relevant news as well as a helpful A-Z of related topics.

http://www.familylives.org.uk/
Helpline: 0800 800 2222 (9am – 9pm, Monday to Friday;10am – 3pm Saturday and Sunday)

 

Daisy’s Dream

Daisy’s Dream supports children and their families who have been affected by the life threatening illness or bereavement of someone close to them.

http://www.daisysdream.org.uk/

Macmillian

If you or someone you know has been diagnosed with cancer, you’re not alone. Find out what to expect, get information, practical advice and support, hear from experts and read about other people’s experiences.

Helpline: 0808 808 00 00 Monday – Friday 9 am – 8 pm
www.macmillan.org.uk/

Together for Short Lives

Together for Short Lives is the leading UK charity for all children with life-threatening and life-limiting conditions and all those who support, love and care for them. We support families, professionals and services, including children’s hospices. Our work helps to ensure that children can get the best possible care, wherever and whenever they need it.

www.togetherforshortlives.org.uk/

Marie Curie

We’re here for people living with any terminal illness, and their families. We offer expert care, guidance and support to help them get the most from the time they have left.

Support Line: 0800 090 2309
www2.mariecurie.org.uk/

Woking and Sam Beare Hospice

Woking and Sam Beare Hospice

Woking & Sam Beare Hospices are independent registered charities that provide Hospice care across Surrey.

As well as providing in-patient care and day care units at both Hospices our community team are vital in providing services over a much wider area including the boroughs of Woking, Spelthorne, Runnymede and Elmbridge.

http://www.wsbhospices.co.uk/

Childline

The UK’s free and confidential helpline is not just for children, it provides help for young people of all ages who are in distress or danger.  Counsellors provide advice and support, by phone and online, 24 hours a day. 

You can get help and advice about a wide range of issues, including violence and abuse in your relationship on the Childline website.  You can also talk to a counsellor online, send an email or post on the message boards.

Whatever your worry, it’s better out than in.

ChildLine has launched an app called Zipit. It helps you get flirty chat back on the right track. It's packed with killer comebacks and top tips to help you stay in control of your chat game. Find out more: childline.org.uk/zipit

Helpline: 0800 1111
www.childline.org.uk

Young Minds

Charity committed to improving the emotional wellbeing and mental health of children and young people.

www.youngminds.org.uk
Parents Helpline 0808 802 5544 Monday - Friday 9.30am - 4pm

Student Minds

Student Minds is the UK's student mental health charity. We believe that peer support can change the state of student mental health. Our vision is for students to take action to foster an environment where everyone has the confidence to talk and listen to each other, the skills to support one another and the knowledge to look after their own mental health.

Helpline: 08444 775 774 Mon-Fri 9:30am - 5.30pm (calls subject to charge)
http://www.studentminds.org.uk/anxiety-disorders.html

Support Line

SupportLine provides a confidential telephone helpline offering emotional support to any individual on any issue. The Helpline is primarily a preventative service and aims to support people before they reach the point of crisis. It is particularly aimed at those who are socially isolated, vulnerable, at risk groups and victims of any form of abuse. SupportLine is a member of the Helplines Association. SupportLine also provides support by email and post.

http://www.supportline.org.uk
Helpline: 01708 765 200

Get Connected

Get Connected is the UK's free, confidential helpline service for young people under 25 who need help, but don't know where to turn.

Helpline: 0808 808 4994
Open from 11am - 11pm every day
http://www.getconnected.org.uk/

Counselling Directory

Counselling Directory aims to be the leading service for providing counselling advice and information - connecting those in distress with the largest support network in the UK.

http://www.counselling-directory.org.uk/

The Site

TheSite.org is the first place young people should check for advice, information and support on sex, relationships, drugs, drink, health and wellbeing.

http://www.thesite.org/

Time to Change

Our aim is to start a conversation… or hopefully thousands of conversations.

We want to empower people with mental health problems to feel confident talking about the issue without facing discrimination. And we want the three quarters of the population who know someone with a mental health problem to talk about it too.

http://www.time-to-change.org.uk/

Have I got a Problem?

HaveiGotAproblem.com is a free online resource to help you understand issues or concerns you may have about mental health or addiction issues.

This site was created to give the public information to help them understand mental health and addiction issues and to assist people in making better informed decisions about their life and personal choices.

 

http://www.haveigotaproblem.com/

 

Acorns

Provides holistic, specialist, palliative care services to children, young people and their families in our region.  We will deliver these services in partnership with others wherever possible, while championing the cause of palliative care for children and young people.

www.acorns.org.uk

Hope Support

We support young people when a close family member is diagnosed with a life-threatening illness. We are here right from the moment of diagnosis and for however long we are needed.

www.hopesupport.org.uk/

Richard House

We deliver clinical care, short breaks and other residential services to children and young adults, while supporting their families through counselling, therapy, bereavement support and more. With a focus on living for today and creating positive memories for tomorrow, we also offer a range of activities for all the family to enjoy.

richardhouse.org.uk/

Martin House

Martin House helps children and young people with a life-limiting condition, along with their families, to live well and fully, offering the best possible end of life care and support to the family in bereavement

www.martinhouse.org.uk/

Princess Alice Hospice

Our specialist nurses, doctors, therapists, social workers, and bereavement volunteers offer care and support for you and your family in your own home or at our Hospice in Esher.

https://www.pah.org.uk/

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